I didn't go to the market today because I had been in so much pain yesterday. Like, the worst pain I've ever felt! It was all down to my BLOODY G-TUBE! I hate that thing!!!!!!!!!!!!!!!! (Thank god it's being removed on Tuesday ...) I could (and still can) feel the tube rubbing constantly between my ribs. Also, at the gtube site, below my left breast, there's been this thing protruding from the hole and it keeps getting bigger and bigger and more painful. It's been like this for 3 weeks.
I've had the nurse from CCAC look at it, sent pictures of it to my family doctor, and showed it to her substitute as well. They said "yup, that's normal. It's just skin growing." But none of them gave me any helpful hints on how to keep it from hurting.
Today, however, my new employee Alison, who also works for a friend of mine who's name is Jenny, texted Jenny about this problem. Alison and I knew that Jenny once had a gtube herself.
This is the information Jenny sent me:
She has granulation tissue and a bit of purulent discharge
The red raised stuff is called granulation, it hurts a ton. Like a ton!You can use silver nitrate, alum (the pickling spice) in a paste, or steroid creams/diaper rash creams to shrink it
The red tissue around the tubeyou can use those things, on that red tissue, and it will make it shrink and go awayyou can also use a bit of Emla or lidocaine cream on it/around it to ease some of the painStabilizing the tube can help too, so keeping it secured and moving the least you canYeah, it's totally normal. That red tissue is formed when the stoma is trying to heal itself. It's not
at all dangerous. Just really painful but it can be treated and the lidocaine can help a ton. Good luck and let me know if I can do anything else.
It sure is more information than any "professionals" had given me! Thank you Jenny! I'm in far less pain than yesterday.
This whole situation has made me wonder, what if before doctors did procedures they could refer people to a networks of patients who have had those same procedures. That way people could get a firsthand experience from the person who has already had the procedure. Yes, I know doctors would absolutely hate everything about that, but idealistically, I like the concept. And we all know that anything useful and practical did not come from a doctor.